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פוסטים נבחרים
פוסטים אחרונים
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הבויעדם
חיפוש לפי תגיות
כדאי לכם לעקוב אחרינו
שידור בגלי צה"ל בתוכנית בוקר עם אפי טריגר
הנה הקישור לתוכנית הרדיו, לחצו כאן "כחלק מעבודתנו בקורס קהילתית נתבקשנו לבחור קהילה, כל קהילה, שאת צרכיה נבחן ונבין. מסקר שעלה והתפרסם בזכות נטע גילינו כי אחד הדברים המשפיעים על מעמדה של המחלה בחברה הוא עניין המודעות. המחלה לא רק שקופה במובן הרפואי של המילה. היא שקופה למוסד הרפואי, הרווחתי, המדיני והתעסוקתי, דבר שמאלץ אנשים החולים בפיברו להתמודד עם קשיים נוספים מלבד הכאב של המחלה. כדי להשיג את המטרה העיקרית והיא העלאת מודעות החלטנו להשתמש באמצעי התקשורת. נטע המהממת נרתמה למשי
יש לי חלום וחזון לעזור לאנשים לעשות שינוי תודעתי
יש לי חלום וחזון לעזור לאנשים לעשות שינוי תודעתי. ואני מאמינה שהוא יתגשם במלואו כי הוא כבר מתגשם.לפני 5 שנים +- לא שמענו בכלל על פיברומיאלגיה ברשתות או ברפואה ולאט לאט המודעות החלה להעלות, עבדנו קשה על כך.
בהתחלה כל מה ששמעתי היו תלונות על מר מצבנו ועל הרפואה ועל החיים וכו' וכו'... והגעתי למסקנה עם חברות טובות לחיים ולפיברומיאלגיה שצריך לפתוח עמותה, עמותה שתוביל דרך חדשה, עמותה שהמוטו שלה הוא "אפשר גם אחרת", אחרת מהדרך שלימדנו אותנו עד היום, אחרת מהדרך של התרופות, דרך של מוד
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